Caring for and being fair with data: Should we complement the FAIR principles with the CARE principles?
DOI:
https://doi.org/10.3145/thinkepi.2023.e17a08Abstract
In recent years, the FAIR (Findable, Accessible, Interoperable, and Reusable) principles have been fully included in the technical dialogue on research data management, and parallel to them, the CARE (Collective Benefit, Authority to Control, Responsibility, Ethics) principles have also emerged. These focus on ethical and governance aspects, placing particular emphasis on indigenous data sovereignty. Unlike the FAIR principles, there are as yet no maturity or "CAREfication" models to assess the adoption of the CARE principles, and their implementation requires community development of services and data management. Despite the differences, an infrastructure that conforms to the FAIR principles can be more easily linked with the CARE principles. This work presents the CARE principles and their possible framing beyond technical management of research data.
References
Carroll, Stephanie R.; Herczog, Edit; Hudson, Maui; Russell, Keith; Stall, Shelley (2021). "Operationalizing the CARE and FAIR Principles for Indigenous data futures". Scientific data, v. 8, n. 1, 108. https://doi.org/10.1038/s41597-021-00892-0
Carroll, Stephanie R.; Plevel, Rebecca; Jennings, Lydia L.; Garba, Ibrahim; Sterling, Rogena; Cordova-Marks, Felina M.; Hiratsuka, Vanessa; Hudson, Maui; Garrison, Nanibaa´ A. (2022). "Extending the CARE Principles from tribal research policies to benefit sharing in genomic research". Frontiers in genetics, v. 13, 1052620. https://doi.org/10.3389/fgene.2022.1052620
España (2023). "Ley Orgánica 2/2023, de 22 de marzo, del Sistema Universitario". BOE, n. 70, pp. 43267-43339. https://boe.es/boe/dias/2023/03/23/pdfs/BOE-A-2023-7500.pdf
Grupo de Interés en Soberanía de Datos Indígenas (2019). Principios CREA para la Gobernanza de Datos Indígenas. Alianza Global de Datos Indígenas. https://static1.squarespace.com/static/5d3799de845604000199cd24/t/5f0621e031811d08f9c4cd27/1594237427481/Principios+CREA.pdf
Higman, Rosie; Bangert, Daniel; Jones, Sarah (2019). "Three camps, one destination: The intersections of research data management, FAIR and Open". Insights the UKSG Journal, 32, 18. https://doi.org/10.1629/uksg.468
Wilkinson, Mark D.; Dumontier, Michel; Aalbersberg, Ijsbrand-Jan; Appleton, Gabrielle; Axton, Myles; Baak, Arie; Blomberg, Niklas; Boiten, Jan-Willem; Da-Silva-Santos, Luiz B.; Bourne, Philip E.; Bouwman, Jildau; Brookes, Anthony J.; Clark, Tim; Crosas, Mercí¨; Dillo, Ingrid; Dumon, Olivier; Edmunds, Scott; Evelo, Chris T.; Finkers, Richard; "¦ Mons, Barend (2016). "The FAIR Guiding Principles for scientific data management and stewardship". Scientific data, n. 3, 160018. https://doi.org/10.1038/sdata.2016.18
